Frustrated by the general lack of responsiveness of the medical industry to new and alternative treatments (with suspicion that most research is drug company funded and colossal bureaucracy generally) I’ve started doing my own research into possible treatments.
I’m on Cortisone right now. The only real treatment gastroenterologist will prescribe when the shit-hits-the-fan (literally). So, since this makes me feel “normal” again i.e. memory improves, body stops aching and becomes limber again etc I have started to look for natural cortisone suppliments.
Found an interesting article about Hypoadrenia and Cortisol which talks about how the human body deal with stress and looks are some food supplements to deal with this. Some of these include:
- Dehydroepiandrosterone (DHEA)
I plan to try some of these and see what effect they have on my symptoms, when I get off the cortisone.
Plan B: Hookworms
My father just emailed me this link to an ABC radio show program on Hookworm in which Jasper Lawrence tell how he managed to get himself infected with Hookworm in Africa and it cured his allergy problem. Apparently it is very effective against all auto-immune problems including Crohns disease. Hes setup a company that sell this worm therapy.
I have emailed them and will try and get myself infected. Will report back once I know more…
In another post I talk about living with Crohns disease. Someone asked me to put a up the script of herbs that my Chinese doctor in Australia put me on. I’ve found it helps when an attack is coming on. Here it is:
The Alexander Technique
Recently I’ve started reading a book about the Alexander Technique and I have found that this is remarkably helpful in dealing with stress. The change in my approach to stressful situations has changed so much that I feel like a different person!
It suggests that some physical problems that manifest in the body are the result of miss-use of the body in times of stress. This stress causes tensions in the body which can result in some nasty things, perhaps even Crohns. There is of course no medical research into this (because there are no drugs involved in this treatment and hence no funding from drug company’s) although it was derived via scientific method. I have found Alexander Technique had immediate benefits for myself. Worth looking into, for everybody really. Its like the drivers instructions for the body.
Here is a list of things I have found affect Crohns over the last 12 years of dealing with it. Western doctors will give you no info regarding this. Mainly because all research is funded by drug company’s and its safer, liability wise, for them to prescribe drugs than diet change. I have meet people who completely control Crohns with diet (vegetarianism) who have suffered much worse than myself. Everyone is different and you have to find the things that aggravate it in yourself.
- Milk is evil. Stay away from all dairy products. Usually you can find soya milk versions of everything.
- Meat seems to have an affect on the digestion generally. I cut it and lost weight and felt better generally. Also any amount of meat (excluding fish) seems to make me feel bloated and tired as its hard to digest.
- Coffee. All stimulants seem to have a stressing affect on the body.
- Cigarettes. I blame smoking for the initial onset of my Crohns as I was a heavy smoker just before I got it and a couple of puffs on a cigarette gives me immediate stomach pain.
- Alcohol. Beer seems to be bad for me. Wine is OK but only small amounts. Spirits are the best but harsh on the body.
- Stress. Medium to high stress _always_ triggers a flare up.
- Changes to sleep patterns. This affects me a lot. Probably due to the stress it causes on the mind/body.
Try more of:
- Fish oils (D vitamin) are very good for you and will help stop Crohns coming back. I take Cod liver oil tables daily now.
- Fresh veg, home grown. Most of the produce in supermarkets is picked very green and has no chance to rippern and thus has almost no nutritional value. I lived for a month only on garden greens (in Czech Republic) and I lost weight and my Crohns was completely reverted.
- Exercise. I found riding my bike 2 hours a day (to+from work) made me very fit and more resilient to stress. When I was in this state I cold drink as much as I liked without much effect on the Crohns.
- Chinese herbs. 6-7 years ago I started to take Chinese herbs for Crohns and found they could completely stop a flare-up. I have managed since them to live without western prescription drugs. This amazing fact also lead me to believe that diet can completely control the condition.
I’d experiment with your diet try being vegetarian or even vegan (I’m about to try this when I return to Berlin) to see how it makes you feel and how your condition responds. If it keeps you off the drugs and out of hospital its worth trying.
Finally the biggest hurdle will be yourself. I tried to ignore it and refused to accept the complete change of life style that it demands. I suffered fairly badly and almost died twice from loss of blood. You are now forced to become aware of your body and what affects it, which is a good thing and I’m grateful to Crohns for that as I know I wouldn’t have gotten there until I was much much older. Sadly most people don’t start to look after their health until it breaks. The sooner you accept it and start to respect it the healthier and happier you’ll be.